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El Granaíno, Rancapino y Caracolillo cantan por Carmen Leyre
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El Granaíno, Rancapino y Caracolillo cantan por Carmen Leyre
El Granaíno, Rancapino y Caracolillo cantan por Carmen Leyre

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Pedro El Granaíno, Rancapino Chico y Caracolillo de Cádiz cantaron el sábado 2 de abril a las 8 de la tarde por Carmen Leyre, niña de 4 años con una enfermedad rara que le impide respirar y tragar por sí misma. La cita es en el Restaurante Los Caballos de Álora.

Estarán acompañados por Patrocinio Hijo y Antonio Higuero, al toque, Edu Gómez y Luis de Pijote, sobrino de Camarón, a las palmas.

El baile lo pondrá el Grupo de Mónica Morales. Además, actuará como telonero El Divino mientras que la presentación correrá a cargo de Antonio Trujillo.

El Festival lo organizan conjuntamente la Asociación Carmen Leyre y el Ayuntamiento aloreño con la colaboración del citado restaurante y la constructora Bilba. Las entradas se pueden adquirir pulsando aquí.

El Granaíno, Rancapino y Caracolillo cantan por Carmen Leyre
El Granaíno, Rancapino y Caracolillo cantan por Carmen Leyre

Carmen Leyre padece miopatía nemalínica, una enfermedad congénita rara que afecta a los músculos. En España sólo hay 26 casos diagnosticados y en el mundo se produce 1 caso por cada 50.000 nacidos.

La miopatía nemalínica de Leyre es severa y necesita estar conectada a un respirador mediante la tráquea y se alimenta a través de un botón gástrico porque no tiene fuerzas para tragar.

No puede llorar, reír ni hablar, tampoco se sostiene sentada y necesita logopeda, fisioterapeuta y fisiopulmonar. Una atención personalizada que le ha permitido tener muchos progresos en su enfermedad.

Contacte con nosotros si necesita más información

Fuente: Pellizco Flamenco


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